STILL NEEDS AWARENESS
Through her participation as a book at the Human Library, Pernille can say for certain that more awareness about epilepsy is needed – despite it being the fourth most common neurological disorder. She recons a lot of people, have little to no knowledge about the condition – and most only know about the seizures.
“The biggest misconception is that epilepsy is JUST the seizures. People think that you get a seizure, get up and go on – and that’s it. It is so much more. It is a chronic and constant condition, that impacts my whole life. The tiredness, the scheduling, the limiting of plans, the flawed memory. For me, I experience a seizure around once every third month – and that is if I am not looking after myself – the other conditions are an everyday reality.”
Being part of the Human Library, and getting to talk about living with epilepsy, has given Pernille more than she expected:
“It has given me so much! Being able to say it out loud – putting it into words – has helped me a lot. But also, to spread knowledge about epilepsy, has been fulfilling.”
Most of all, Pernille is surprised and joyful about the way people reacts to her story:
“People get emotional and happy – they get surprised – Wow, is it really like that to live with epilepsy. It makes me feel that, I am not alone with my illness. I am also a human being, I am not just an illness or condition.”
To get more information about Purple Day visit: http://www.purpleday.org/, or get more information about epilepsy here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-epilepsy